Intellectual / Developmental Disability and
Psychological Resource Book

Table of Contents

Applied Behaviour Analysis (ABA)

What is ABA?

  • The application of principles of behaviour to provide a measurable change in behaviour through the manipulation of the environment.
  • Identify functional relationships between behaviour and the environment.


But first, what is behaviour?
Something that can be, objectively defined, accurately measured, and easily observed.

  • Everything people do, including how they move, what they say, think and feel


Does it pass the dead mans test?
  Only a living organism can emit behaviour

  • If a dead man can do it – it is not behaviour
  • Example of behaviour definition: “non-compliance”: failure to comply with the demand within a certain amount of time
    • Can a dead man fail to comply with a demand? Yes.
    • “Refusal” could be used instead.
    • Let’s define what refusal looks like – “responding with a vocal ‘no’ when a demand is placed”. Only a living being can say no!

Functional Behaviour Assessment – understanding functional relationships

We use a variety of methods to understand WHY a behaviour may be occurring.

  • Interviews;
  • Data collection;
  • Questionnaires;
  • Rating scales;
  • Observations, etc.


Why are these methods helpful?

  • To identify and understand patterns of behaviour to create an appropriate intervention.

EXAMPLE: ABC analysis (antecedent, behaviour, consequence)
what happens before, during, and after a behaviour

Whenever I see a bag of Reece’s mini’s, I stop and eat the whole thing!

Antecedent: I see the bag of chocolate in my pantry.

Behaviour: I eat the whole bag.

Consequence: The chocolate taste delicious! I know this wasn’t a healthy choice.

This problem could easily be remedied through an antecedent strategy. You guessed it…don’t buy chocolate.

BUT chocolate is my roommates’ favourite – so I can’t not buy it. How else can we change the environment to help me with this problem?

A: I put a visual representation of my fitness goals next to the chocolate in the pantry.  Some people choose pictures of themselves, others may write a specific weight goal, etc.

B: I go to get chocolate and I see the visual. I decide not to eat the chocolate.

C: I put a dollar in my “good decision” jar, which can be cashed in for new clothes every week!

By changing the environment and adding a reinforcing consequence (rewarding myself with a dollar) for a good decision, I have changed a bad habit!

References:
Cooper, J. O., Heron, T. E., & Heward, W. L. (2019). Applied Behavior Analysis (3rd Edition). Hoboken, NJ: Pearson Education.

Autism Spectrum Disorder (ASD)

Autism Spectrum Disorder (ASD) is a neurological and developmental disorder associated with these symptoms:

  • Difficulty with communication and interaction with other people
  • Restricted interests
  • Repetitive behaviours
  • Symptoms that affect the ability to function in school, work, and other areas of life
  • Sensory issues

Symptoms of ASD typically appear in the first two years of life.
ASD is known as a “spectrum because there is wide variation in the type and severity of symptoms people experience.

Social Communication/interaction behaviours may include:

  • Making little or inconsistent eye contact
  • Appearing not to look at or listen to people who are talking
  • Infrequently sharing interest, emotion, or enjoyment of objects or activities  (including by infrequently pointing at or showing things to others)
  • Not responding or being slow to respond to one’s name or to other verbal bids for attention
  • Having difficulties with the back and forth of conversation
  • Often talking at length about a favorite subject without noticing that others are not interested or without giving others a chance to respond
  • Displaying facial expressions, movements, and gestures that do not match what is being said
  • Having an unusual tone of voice that may sound sing-song or flat and robot-like
  • Having trouble understanding another person’s point of view or being unable to predict or understand other people’s actions
  • Difficulties adjusting behaviors to social situations
  • Difficulties sharing in imaginative play or in making friends


Restrictive/Repetitive behaviours may include:

  • Repeating certain behaviors or having unusual behaviors, such as repeating words or phrases (a behavior called echolalia)
  • Having a lasting intense interest in specific topics, such as numbers, details, or facts
  • Showing overly focused interests, such as with moving objects or parts of objects
  • Becoming upset by slight changes in a routine and having difficulty with transitions
  • Being more sensitive or less sensitive than other people to sensory input, such as light, sound, clothing, or temperature


Some strengths may include:

  • Being able to learn things in detail and remember information for long periods of time
  • Being strong visual and auditory learners
  • Excelling in math, science, music, or art


Supporting someone with ASD

  • Be consistent in how you communicate as well as in your interactions.
  • Understand and know their schedule, so that you can be part of their routine and not disrupt it.
  • First/Then cues. This can help motivate to engage in a less preferred task before engaging in a more fun activity.
  • Practice social skills.
  • Assist with providing positive reinforcement by knowing what behaviour is expected and rewarded. Then praise accordingly.
  • Use pictures, sounds, gestures or facial expressions, to encourage interaction with others and communication skills. In this way, you will be able to better understand what is needed and when it is being asked for.

Think of fun things to do that keep in mind the sensory sensitivities specific to the person and schedule time to enjoy being with them.

References:
Autism spectrum Disorder. (n.d.). National Institute of Mental Health (NIMH).

https://www.nimh.nih.gov/health/topics/autism-spectrum-disorders-asd

Signs & Symptoms | Autism Spectrum Disorder (ASD) | NCBDDD | CDC. (2023, January 11). Centers for Disease Control and Prevention.

https://www.cdc.gov/autism/signs-symptoms/?CDC_AAref_Val=https://www.cdc.gov/ncbddd/autism/signs.html

What is autism spectrum disorder? (n.d.).

https://www.psychiatry.org/patientsfamilies/autism/what-is-autism-spectrum-disorder

Behaviour Support Plans

A Behaviour Support Plan is a document that is based on a written functional assessment of the person that considers historical and current, biological and medical, psychological, social and environmental factors (a bio-psycho-social model) of the person with a developmental disability that outlines intervention strategies designed to focus on the development of positive behaviour, communication and adaptive skills.
(QAM, s.15(2) definitions)

The written functional assessment refers to a detailed analysis of the behaviour relative to the environmental factors at play and as a best practice should be based on direct observation and data (as described above – although with behaviours more complex than eating Reese’s minis).

Positive Behaviour Intervention

  • Means the use of non-intrusive behaviour intervention strategies for the purpose of reinforcing positive behaviour and creating a supportive environment, with a goal of changing the behaviour of the person with a developmental disability.
  • The following are examples of non-intrusive behaviour intervention strategies:

a) Teaching or learning components, including teaching proactive skills and communication strategies to maximize the person’s abilities and to minimize challenging behaviour.

b) Reinforcement.

c) A review of the person’s living environment, including the physical space, and support and social networks, to identify possible causes of challenging behaviour and making changes to the living environment to reduce or eliminate those causes. (QAM, s.15 (5))

Intrusive Behaviour Intervention

  • Means a procedure or action taken on a person in order to address the person with a developmental disability’s challenging behaviour, when the person is at risk of harming themselves or others or causing property damage. (QAM, s.15(2) definitions)
  • For purposes of the definition of “intrusive behaviour intervention”, the following are examples of intrusive procedures or actions:

    a) Physical restraint
    b) Mechanical restraint
    c) Secure isolation or confinement time out in a designated, secure space.


Prescribed medication to assist the person in calming themselves, with a clearly defined protocol developed by a physician as to when to administer the medication and how it is to be monitored and reviewed (QAM, s.15(4))

References:

Ministry of Community and Social Services. (2017). BEHAVIOURAL SUPPORT PLAN

REFERENCE GUIDE for ADULT DEVELOPMENTAL SERVICES. In Ontario Regulation 299/10 Quality Assurance Measures (QAM) and the Policy Directives for Service Agencies.

https://www.mcss.gov.on.ca/documents/en/mcss/developmental/EN_BSP_REFERENCE.pdf

Bipolar Disorder

Bipolar disorder is a mental illness that causes unusual shifts in mood, energy, activity levels, concentration, and the ability to carry out day-to-day tasks.

Bipolar disorder is typically diagnosed during late adolescence (teen years) or early adulthood. Occasionally, bipolar symptoms can appear in children. Although the symptoms may vary over time, bipolar disorder usually requires lifelong treatment.  Following a prescribed treatment plan can help people manage their symptoms and
improve their quality of life.


Types of bipolar disorder

  • Bipolar I disorder: is defined by manic episodes that last at least 7 days (most of the day, nearly every day) or by manic symptoms that are so severe that the person needs immediate hospital care. Usually, depressive episodes occur as well, typically lasting at least 2 weeks. Episodes of depression with mixed features (having depressive symptoms and manic symptoms at the same time) are also possible. The experience of four or more episodes of mania or depression within a year is termed “rapid cycling.”
  • Bipolar II disorder: is defined by a pattern of depressive episodes and
    hypomanic episodes, but the episodes are less severe than the manic episodes in bipolar I disorder.
  • Cyclothymic disorder: (also called cyclothymia) is defined by recurrent
    hypomanic and depressive symptoms that are not intense enough or do not last long enough to qualify as hypomanic or depressive episodes.


Sometimes a person might experience symptoms of bipolar disorder that do not match the three categories listed above, and this is referred to as “other specified and unspecified bipolar and related disorders.”

The table below provides list of manic and depressive symptoms

Symptoms of a Manic EpisodeSymptoms of a Depressive Episode
Feeling very up, high, elated, or extremely irritable or touchyFeeling very down or sad, or anxious
Feeling jumpy or wired, more active than usualFeeling slowed down or restless
Decreased need for sleepTrouble falling asleep, waking up too early, or sleeping too much
Talking fast about a lot of different things (“flight of ideas”)Talking very slowly, feeling unable to find anything to say, or forgetting a lot
Racing thoughtsTrouble concentrating or making decisions
Feeling able to do many things at once without getting tiredFeeling unable to do even simple things
Excessive appetite for food, drinking, sex, or other pleasurable activitiesLack of interest in almost all activities
Feeling unusually important, talented, or powerfulFeeling hopeless or worthless, or thinking about death or suicide

The table below outlines the major symptoms for a manic episode and appropriate interventions:

Mania & Hypermania Symptoms & Intervention

SymptomPresentationPresentation Intervention
Inflated self-esteem or grandiosityUnusually positive outlook about self, the future, and surroundings. False sense of well-being, highly confident.Orient client to reality
Decreased need for sleepFeeling rested after only a few hours of sleep.Promote sleep hygiene - providing routine meals and sleep schedule. Provide sleep aid medication if ordered.
TalkativeMore talkative than usual or pressure to keep talking.Allow client to communicate as needed. Request for client to speak slowly, and repeat request as a reminder during conversations
Flight of ideasSpeaks rapidly about multiple subjects and experiences racing thoughts.Provide focus for the client during conversations.
DistractibilityAttention is easily drawn to unimportant or irrelevant external stimuli.Repeatedly redirect to important stimuli as needed.
Goal-directedin goal-directed activity (either socially, at work/school, or sexually) or psychomotor agitation (purposeless non-goal-directed activity). Excessive involvement in activities that have a high potential for painful consequences (e.g., engaging in unrestrained buying sprees, sexual indiscretions, or foolish business investments).Set limits, boundaries, and redirection. Redirect to more appropriate behaviors. Promote a different, more appropriate activity, such as exercise.

References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Bipolar Disorder. Ontario Tech University.

Borderline Personality Disorder

Borderline personality disorder is a mental illness that severely impacts a person’s ability to regulate their emotions. This affects the way someone thinks and feels about themselves and others. This causes problems with functioning in everyday life.

Individuals with borderline personality disorder have an intense fear of abandonment, instability and may have difficulty tolerating being alone.
They may experience inappropriate anger, impulsiveness, frequent mood swings, may push others away even though they want to have loving and lasting relationships.


Borderline personality disorder typically begins in early adulthood.

Symptoms:

  • An intense fear of abandonment, even going to extreme measures to avoid real or imagined separation or rejection
  • A pattern of unstable intense relationships, such as idealizing someone one moment and then suddenly believing the person doesn’t care enough or is cruel
  • Rapid changes in self-identity and self-image that include shifting goals and values, and seeing yourself as bad or as if you don’t exist at all
  • Periods of stress-related paranoia and loss of contact with reality, lasting from a few minutes to a few hours
  • Impulsive and risky behavior, such as gambling, reckless driving, unsafe sex, spending sprees, binge eating or drug abuse, or sabotaging success by suddenly quitting a good job or ending a positive relationship
  • Suicidal threats or behavior or self-injury, often in response to fear of separation or rejection
  • Wide mood swings lasting from a few hours to a few days, which can include intense happiness, irritability, shame or anxiety
  • Ongoing feelings of emptiness
  • Inappropriate, intense anger, such as frequently losing your temper, being sarcastic or bitter, or having physical fights


References:

Borderline Personality Disorder (BPD). (n.d.). CAMH.
https://www.camh.ca/en/health-info/mental-illness-and-addictionindex/borderline-personality-disorder

Cluster B disorders. (n.d.). Psychology Today.

https://www.psychologytoday.com/ca/basics/cluster-b

MindYourMind. (2016, October 13). Personality Disorders – Cluster B –

https://mindyourmind.ca/mental-health-wellness/personality-disorders-clusterb/

 

Dementia

“Dementia is not a specific disease but is rather a general term for the impaired ability to remember, think, or make decisions that interferes with doing everyday activities. Alzheimer’s disease is the most common type of dementia.

Though dementia mostly affects older adults, it is not a part of normal aging.” (CDC, 2019).

Image from: What are the symptoms of dementia How is it diagnosed. (2022). Dementia Talk Club. https://dementiatalkclub.weebly.com/blog/what-are-the-symptoms-of-dementiahow-is-it-diagnosed

What are the signs and symptoms of dementia?

Because dementia is a general term, its symptoms can vary widely from person to person. Some signs that may point to dementia include:

  • Getting lost in a familiar neighborhood
  • Using unusual words to refer to familiar objects
  • Forgetting the name of a close family member or friend
  • Forgetting old memories
  • Not being able to complete tasks independently

Supporting Someone with Dementia

Environmental Strategies:

  • Encourage the individual to maintain their independence.
  • Promote a stress-free and calm environment; designed with a person’s sensory and other problems in mind.
  • Daily routines should be maintained but avoid teaching new skills.
  • Pictures and signs can be used to help a person find their way around the house (e.g. Clients pictures on their doors, pictures of content of drawers, closets, cupboards that person usually uses)
  • The bathroom door could be painted a bright colour to make it easy to find.
  • Continue using familiar community resources and leisure activities for as long as possible.
  • Mirrors can be removed or covered, as a person may not recognize their own reflection, lighting should not glare.
  • Avoid words like “remember when…, what did we talk about earlier…, I just told you…” or engaging in power struggles about something that happened.
  • Keep in mind that if they don’t remember it’s like it didn’t happen in their world.
  • Keep photographs and other items that are comforting around (this varies per person).
  • Focus on successes and be mindful of body language.
  • People who the person spends time with, including other people with intellectual disabilities, should be helped to understand the condition and how they can be involved in the person’s support.

Maintaining Skills:

  • The emphasis with a person with dementia should be on maintaining abilities, NOT on teaching new skills.
  • Tasks should not be time-limited. They should take place in a calm environment free of bustle and distraction.
  • Having a consistent routine can help maintain skills longer and reduce challenging behaviour related to anxiety.
  • The environment itself should be organized in a way that makes it easy to know where things are, important items like the TV remote control should be kept in the same place.
  • Tasks that are repetitive and simplistic can be soothing and help maintain confidence.


Coping with Sundowning (a state of confusion occurring in the late afternoon and spanning into the night)

  • Reduce noise, clutter, or the number of people in the room.
  • Try to distract the person with a favorite snack, object, or activity. For example, offer a drink, suggest a simple task like folding towels, or turn on a familiar TV show.
  • Make early evening a quiet time of day. You might play soothing music, read, or go for a walk. You could also have a family member or friend call during this time.
  • Close the curtains or blinds at dusk to minimize shadows and the confusion they may cause. Turn on lights to help minimize shadows.
  • If the person likes to have something to cuddle, consider a soft toy.
  • Gentle exercise may help someone to sleep – but try to avoid exercise too close to bedtime.
  • Make sure the person’s home is safe – leave a light on in the hall and toilet; consider a nightlight in the bedroom and remove any tripping hazards.

Being too tired can increase late-afternoon and early-evening restlessness.

Try to avoid this situation by helping Client:

  • Go outside or at least sit by the window—exposure to bright light can help reset the person’s biological clock
  • Get physical activity or exercise each day
  • Get daytime rest if needed, but keep naps short and not too late in the day

Avoid things that seem to make sun downing worse:

  • Do not serve coffee, cola, or other drinks with caffeine late in the day.
  • Do not plan too many activities during the day. A full schedule can be tiring.

References:

Tips for coping with sundowning. (2017, May 17). National Institute on Aging.

https://www.nia.nih.gov/health/alzheimers-changes-behavior-andcommunication/tips-coping-sundowning

Understanding and supporting a person with dementia. (2022, June 27). Alzheimer’s Society.

https://www.alzheimers.org.uk/get-support/help-dementiacare/
understanding-supporting-person-dementia

What is dementia? | CDC. (2019). https://www.cdc.gov/aging/dementia/index.html

Down Syndrome

Definition: Down syndrome is a genetic disorder where the individual is born with an extra chromosome (47 instead of 46). This extra chromosome causes physical and developmental delays and disability. Physical characteristics Include: pronounced folds of skin in the inner corners of the eye, almond shaped eyes that slant up, wide set eyes
flattened appearance of the face, large protruding tongue, short stature and small ears.

Common developmental and health concerns:

  • neurological and cognitive differences
  • mild to moderate intellectual delays
  • behavioural issues
  • speech deficits
  • memory impairment
  • higher prevalence of autism spectrum disorder
  • heart defects
  • vision and hearing impairment
  • thyroid problems
  • respiratory issues
  • sleep disorders
  • mental health issues
  • gastrointestinal issues
  • dental problems
  • early-onset Alzheimer’s and dementia


Supporting someone with Down syndrome:

  • set routines for daily activities as routine helps ease stress
  • speak clearly and calmly giving extra time to comprehend what is being said
  • praise goes a long way
  • watch for changes in mood or behaviour as they may not be able to communicate when something is wrong
  • visually showing how to complete a task as opposed to just giving verbal instructions
  • provide extra practice time when learning a new task or skill
  • encourage healthy eating and physical activity
  • monitor/follow dietary restrictions closely (due to difficulties with oral motor skills, including chewing, drinking and swallowing)


References:

Baksi, L. & Symbol UK. (2005). Supporting people who have Down syndrome to overcome communication difficulties (pp. 2–4).

https://downsyndromedevelopment.org.uk/wpcontent/
uploads/2021/01/Overcoming_communication_difficulties.pdf


Down Syndrome Resource Foundation. (2022, May 9). Frequently asked questions – Down Syndrome Resource Foundation.

https://www.dsrf.org/faq/


Stumbo, E. (2014, January 14). A closer look at the physical characteristics of Down syndrome
– Ellen Armendáriz Stumbo. Ellen Armendáriz Stumbo.

https://www.ellenstumbo.com/closer-look-physical-characteristics-down-syndrome/

Fetal Alcohol Syndrome (FASD)

Please find the following resources for this section below:

  • CTCTC – FASD Slideshow (34 pages)
  • Eight Magic Keys to Planning for Students with FASD (2 pages)


References:

FASD – Fetal Alcohol Spectrum Disorder. (n.d.). Cochrane Temiskaming Children’s Treatment Centre. Attached

Eight Magic Keys – Planning for Students with Fetal Alcohol Spectrum Disorder.
(1997). Evenson, D. & Lutke, J., Attached

Fragile X Syndrome (FXS)

What’s Fragile X Syndrome (FXS)?

Fragile X syndrome (FXS), also known as Martin-Bell syndrome, is the most common cause of inherited intellectual disability. FXS is caused by a change in a gene on the X chromosome. This change means the body cannot make a protein needed for normal brain development.

Facts about FXS

There are not always interventions for the below symptoms, however, seeing a decrease/absence of symptoms may indicate if a patient/client’s medications are working.

It can lead to:

  • developmental delays
  • learning disabilities
  • social and behavioral problems
  • intellectual disabilities

People with FXS also may have other conditions, including:

  • autism
  • attention deficit hyperactivity disorder (ADHD)
  • seizures


Students with FXS may:

  • need accommodations and assistive or adaptive equipment
  • need extra learning support
  • have problems with planning, problem-solving, and impulsivity
  • be very sensitive to sounds, lights, textures, tastes, and smells
  • require occupational, physical, and speech therapies
  • may need frequent breaks to help cope with anxiety and worry
  • need small-group or one-on-one instruction for new concepts or tasks


What Workers Can Do

Individuals with FXS work best in a calm, structured learning environment without distractions.

  • Using visual cues in addition to verbal instructions.
  • Making time for extra breaks.
  • Letting them wear noise-reduction headphones, dimming lights (if possible), providing quiet areas, and limiting distractions.
  • teaching the individual self-calming strategies to avoid emotional outbursts
  • Providing consistency and maintaining routines in the home
  • encouraging participation in all appropriate activities


References:

Gavin, M. L. (2020, September). Fragile X syndrome factsheet (for Schools) (for parents) – nemours kidshealth. KidsHealth.

https://kidshealth.org/en/parents/fxs-factsheet.html

Generalized Anxiety Disorder (GAD)

Generalized anxiety disorder is chronic anxiety, with symptoms occurring for at least 6 months. A person with GAD has excessive worry that is difficult to control. It impairs work, ability to sustain relationships, and daily functioning. It is twice as common in the female population than it is for the male population.

Major Symptoms and Interventions of GAD

SymptomPresentationPresentation Intervention
FatigueFeeling easily tiredEncourage sleep hygiene, adequate nutritional and fluid intake. Refer to dietician if needed
Concentration and restlessnessDifficulty concentrating or patient's mind going blank. Pacing, inability to stay stillGrounding, and mindfulness. Refer to psychologist or CBT programming if available
IrritabilityBeing easily agitatedEncourage client to attend to enjoyable activities - refer to recreational therapist
Muscle tensionFeeling stiffRelaxation techniques, meditation
SleepSleep disturbance (difficulty falling or staying asleep, restless, unsatisfying sleep)Encourage routine meals, and sleep schedule

Interventions for all Anxiety Disorders

  • Provide a safe and low stimulus environment, and privacy during a panic attack or during a heightened state of anxiety.
  • Stay with patient/client to provide validation and reassurance.
  • Remind client of coping skills.


Treatment for GAD

If the GAD disorder is mild, no treatment may be required, and the physician may follow up every 3 months to observe for any worsening symptoms.

If treatment is required, cognitive behavioral therapy (CBT) can be used as treatment on its own, or in combination with medication (selective serotonin reuptake inhibitors or serotonin-norepinephrine reuptake inhibitors).

References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Generalized Anxiety Disorder (GAD). Ontario Tech University.

Intellectual Disability

Intellectual disability is a developmental disability. It can affect people in different ways and at different levels. Intellectual disability is a life-long condition. There are three criteria that need to be identified to provide a diagnosis.

1. The individual’s general intelligence needs to be developing/or have developed at a slower rate.

This can be seen through difficulties at school, special education classes, etc.

2. There needs to be significant difficulties in the individual’s everyday living skills.

Difficulty maintaining employment, social skills, communication, selfcare, self-direction, home living, functional academics, etc.

3. Challenges with intelligence and everyday living skills prior to age 18.

If working with an adult, the difficulties listed above must have been noted in early life

Causes

There are many causes of intellectual disability; however, sometimes the causes may be unknown. Some causes are:

  • Genetic syndromes (e.g. Down syndrome or Fragile X)
  • Could develop following an illness (e.g. meningitis, whooping cough, measles)
  • Could result from head trauma
  • Difficulties during pregnancy or delivery (e.g. not getting enough oxygen)
  • Environmental influences during pregnancy (e.g. alcohol or drug use)


Different Severities of Intellectual Disability

Intellectual disability has four different severities. The most common severity of intellectual disability is “mild”. People with intellectual disability in the mild range learn at a slower rate but with early intervention and support from adults throughout their childhood and early adulthood, can live an independent or semi-independent life. They may graduate high school, have relationships, or maintain a job.

“Moderate”, “severe”, and “profound” are the other severities of intellectual disability.  These are less common but usually make it harder for the individual to live an independent life.

Supporting someone with Intellectual Disability

Everyone is different and intellectual disability can affect everyone differently.  Therefore, individualized plans and getting to know how the individual learns are important in supporting them the best way possible. Listed below are some general strategies for supporting individuals with intellectual disabilities.

  • Use clear, simplified language
  • Do not raise your voice unless asked to
  • Be polite and patient – do not rush the conversation
  • Speak directly to the person
  • Be flexible – reword if needed rather than repeating yourself
  • Ask the individual how they communicate best (e.g. visually, verbally, or a combination)
  • Ask questions if you do not understand what they are saying


References:

Do2Learn. (1999-2021). Intellectual Disability, Strategies. Do2Learn.

https://do2learn.com/disabilities/CharacteristicsAndStrategies/IntellectualDisability_Strategies.html

Major Depressive Disorder

What are Mood Disorders?

Before we get into the clinical details, remember that patients/clients may have no control of their own behavior/speech, so it is important to always take your time, and be patient when caring for them. Keep in mind that they may not be in a state to fully appreciate what you are saying now, and they will not forget how you made them feel.

Mood Disorders are a class in mental illness that broadly encompasses various types of bipolar disorders and depression. This disorder can affect all ages of patients/clients, where the symptoms of mood disorders may be expressed differently by each age group.

Major Depressive Disorder

Major depressive disorder (otherwise known as depression), is a common and recurring mood disorder that impacts a person’s daily functioning. The World Health Organization (WHO) ranks major depression as the 11th cause of disability and mortality.

  • Five (or more) of the following symptoms represent a change from previous functioning of a person; at least one of the symptoms is either (1) depressed mood or (2) loss of interest or pleasure.

Major Symptoms and Interventions of Depression

SymptomPresentationIntervention
Depressed MoodDepressed mood most of the day (e.g., feels sad, empty, hopeless) or observed by others (e.g., appears tearful). In children and adolescents, it may display as irritable.Observe and assess for fluctuations in mood, worsening mood. Document in MSA/MSE, and in progress note.
Diminished InterestNo longer interested in any activities.Encourage client to attend recreational groups and activities, even if it's passive participation. Connect with a recreational therapist for client-centered activities.
Weight lossSignificant weight loss, weight gain, or change in appetite.Collaborate with a dietician to increase caloric intake, provide food or beverages that interest client.
Insomnia / HypersomniaInsomnia: difficulty falling asleep, waking up too early, waking up in the middle of the night, difficulty paying attention.Assist with providing good sleep hygiene.

Maintain routine times of waking up, going to bed, and regular timed meals. Connect with an occupational therapist.

Advocate for and provide medication to aid with sleep. Provide medication if all other non-pharmacological interventions are not effective.
Psychomotor AgitationPsychomotor agitation, slow speech, slow movement, slow thought processes.Staff should allow adequate time to accommodate for slow movement and thought processes.

Use of de-escalation techniques, distraction, and redirection if client becomes agitated.

Offer medications if nonpharmaceutical methods do not reduce agitation.
FatigueFatigue or loss of energy.Encourage adequate food and fluid intake, low impact exercise or mobility.
Worthlessness / GuiltFeelings of worthlessness or excessive or inappropriate guilt (which may be delusional).Provide validation for emotions and support. Connect with a psychologist or advocate for referral to psychotherapy/CBT programming.

Build therapeutic relationships and rapport. Use positive affirmations change negative thinking processes.

It is easier to change negative thinking processes if you have a therapeutic relationship and rapport with the client.
Lack of concentration / IndecisivenessDiminished ability to think or concentrate, experiences indecisiveness.Be mindful of the client's limitations at this time; providing patience, dignity, and respect. Be clear and speak slowly during interactions. Repeat important information. Provide frequent reminders.
Suicidal ThoughtsRecurrent thoughts of death, suicidal ideation, suicide attempts.Perform daily or more (depending on facility’s policies and client acuity) suicide risk assessment. Observe any environmental safety concerns, remove items that pose a risk.

May need to advocate to increase observation depending on suicide and self-harm risk.

Interventions for Depression

  • Reflect on your own personal bias, avoid including your own biases during interactions with clients.
  • Encourage food and fluid intake, mobility, exercise.
  • Provide psychoeducation for dietary and mobility needs.
  • Encourage good sleep hygiene – routine schedule.
  • Assess daily for MSA, specifically for mood fluctuations, improvements.
  • Assess daily for suicidal risk assessment, thoughts of self-harm.
  • Use the Recovery Model of care for treatment planning and interventions.
  • Evaluate effectiveness of interventions, and revise plan of care as needed.
  • Inform psychiatrist and interdisciplinary team for worsening mood, functioning, or suicide thoughts.


Treatment for Depression

Treatment for Depression: Psychotherapy

Cognitive behavioural therapy (CBT) is a psychotherapeutic treatment originally developed for depression. It is assumed that behaviour is mediated by one’s thoughts. Therefore, changing the behaviour will affect one’s thoughts, and vice versa. The goal of CBT is to change a person’s negative thought process.

Treatment for Depression: Pharmacology

Antidepressants, typically Selective Serotonin Reuptake inhibitors (SSRI), are prescribed for depression. If one medication is not effective, the physician trials another, until one of the medications improves depression symptoms with the least side effects.
Antidepressants in general take 2-6 weeks to observe any improvements in mood.

Types of medications for major depressive disorder:

  • Selective serotonin reuptake inhibitors
  • Cyclic antidepressants
  • Tetracyclic antidepressants
  • Atypical antidepressants
  • Monoamine oxidase inhibitors (MAOIs)


References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Major Depressive Disorder. Ontario Tech University.

Obsessive-Compulsive Disorder (OCD)

Obsessions or compulsions are time-consuming (e.g. they take more than 1 hour per day) or cause clinically significant distress or impairment in social, occupational, or other important areas of functioning.

*It is important to note that OCD symptoms are not attributable to the physiological effects of a substance (e.g., a drug of abuse, a medication) or another medical condition.

Obsessions:

  • Recurrent and persistent thoughts, urges, or images that are experienced, at some time during the disturbance, as intrusive and unwanted, and that in most individuals cause marked anxiety or distress.
  • The individual attempts to ignore or suppress such thoughts, urges, or images, or to neutralize them with some other thought or action (i.e., by performing a compulsion).


Compulsions:

  • Repetitive behaviors (e.g., hand washing, ordering, checking) or mental acts (e.g., praying, counting, repeating words silently) that the individual feels driven to perform in response to an obsession or according to rules that must be applied rigidly.
  • The behaviors are aimed at preventing or reducing anxiety or distress, or preventing some dreaded event or situation; however, these behaviors or mental acts are not connected in a realistic way with what they are designed to neutralize or prevent, or are clearly excessive.

OCD Important Symptom & Presentation

SymptomPresentation
Intrusive thoughts (obsessions)Recurrent and persistent thoughts, urges, or images that are unwanted, and causing high levels of anxiety.

Interventions for Depression

  • Reflect on your own personal bias, avoid including your own biases during interactions with clients.
  • Encourage food and fluid intake, mobility, exercise.
  • Provide psychoeducation for dietary and mobility needs.
  • Encourage good sleep hygiene – routine schedule.
  • Assess daily for MSA, specifically for mood fluctuations, improvements.
  • Assess daily for suicidal risk assessment, thoughts of self-harm.
  • Use the Recovery Model of care for treatment planning and interventions.
  • Evaluate effectiveness of interventions, and revise plan of care as needed.
  • Inform psychiatrist and interdisciplinary team for worsening mood, functioning, or suicide thoughts.


Treatment for Depression

Treatment for Depression: Psychotherapy

Cognitive behavioural therapy (CBT) is a psychotherapeutic treatment originally developed for depression. It is assumed that behaviour is mediated by one’s thoughts. Therefore, changing the behaviour will affect one’s thoughts, and vice versa. The goal of CBT is to change a person’s negative thought process.

Treatment for Depression: Pharmacology

Antidepressants, typically Selective Serotonin Reuptake inhibitors (SSRI), are prescribed for depression. If one medication is not effective, the physician trials another, until one of the medications improves depression symptoms with the least side effects.
Antidepressants in general take 2-6 weeks to observe any improvements in mood.

Types of medications for major depressive disorder:

  • Selective serotonin reuptake inhibitors
  • Cyclic antidepressants
  • Tetracyclic antidepressants
  • Atypical antidepressants
  • Monoamine oxidase inhibitors (MAOIs)


References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Major Depressive Disorder. Ontario Tech University.

Oppositional Defiant Disorder (ODD)

Definition: ODD is a behaviour disorder in which a person displays a pattern of angry or irritable mood, defiant or confrontational behavior, and vindictiveness toward people in
authority. The exact cause of ODD is not known, but a combination of biological, genetic, and environmental factors may contribute to the condition.

Common behaviours:

  • Throwing repeated temper tantrums
  • Excessively arguing with persons with authority
  • Actively refusing to comply with requests and rules
  • Trying to annoy or upset others, or being easily annoyed by others
  • Blaming others for mistakes
  • Having frequent outbursts of anger and resentment


Behaviour Intervention Strategies:

Provide Choice

Demands may be better received if they are presented as a choice rather than a direct instruction. In this way, the client experiences an opportunity for control without having to engage in challenging behaviours. For example:

  • Do you want to get dressed first or brush your teeth first? vs. Go get dressed then brush your teeth.
  • Do you want to clean your room before or after supper? vs. Go clean your room.
  • We have to put the shoes away and sweep – which one do you want to do and I will do the other one? vs. Go put the shoes away so I can sweep.

Avoid Power Struggles (‘Time In’)

  • When the client shows dislike for a task or is argumentative, walk away. After a few minutes, return and ask them if they would like some help or ask if they are ready to follow through on the request. If they say they are not ready, inform him/her you will check in again in a few minutes.
  • Remain neutral in your reactions and disengage when he/she starts to become argumentative. Inform them you will be available to talk when they are ready (i.e., time in). It is important to eliminate deliberate directives (demands) at this point.  Any of the client’s attempts to argue or engage in a power struggle are ignored, and he/she is merely reminded of how they can access the enriched environment of attention and control.
  • As soon as they calm, staff should immediately praise the client for their efforts with self-regulating and making great choices.
  • When they are showing agitation, calmly but firmly remind the client that you are on their side and are there to help them solve their problems calmly when they are ready.


Transitions (Changing from one activity to the next)

  • Prepare the client with upcoming transitions by ensuring you have his/her attention and clearly stating the expectations (e.g., “In 10min, we are going to clean up to get ready for supper, sound good?”) and waiting for their acknowledgement before
    moving on.


References:

K. Barloso, Autism Parenting Magazine. Oppositional Defiant Disorder Treatment Plan (October 18, 2023). Accessed at:

https://www.autismparentingmagazine.com/oppositional-defiant-disordertreatment/

Mayo Clinic, Oppositional defiant disorder (ODD) (January 4, 2023). Accessed at:

https://www.mayoclinic.org/diseases-conditions/oppositional-defiantdisorder/symptoms-causes/syc-20375831

ODD: A Guide for Families by the American Academy of Child and Adolescent Psychiatry: Oppositional Defiant Disorder (2009). Accessed at

https://www.aacap.org/App_Themes/AACAP/docs/resource_centers/odd/odd_resource_center_odd_guide.pdf

Panic Disorder

When a person has recurring rapid attacks of intense anxiety, fear, and discomfort that becomes debilitating.

The table below outlines the major symptoms and appropriate nursing interventions:

Panic Disorder Symptoms & Intervention

SymptomPresentationIntervention
FearSweating, fear of losing control, fear of dying, restlessness.Teach coping skills or strategies when patient/client is not in a heightened emotional state. Remind client of these strategies when in a heightened state. Provide privacy, decrease stimuli.
Derealization or depersonalization.Patient feels detached from surroundingsDuring interaction, you may need to speak loudly, clearly, and slowly. You may need to repeat sentences multiple times.
Physiological SymptomsParesthesia, feeling dizzy/unsteady/lightheaded/faint, trembling, shaking, palpitations, shortness of breath, smothering, chest pain or discomfort, nausea, abdominal discomfort.Use grounding techniques such as providing ice for bodily comfort, focus on the moment (mindfulness).

Model deliberately slow breathing exercise to reduce physiological symptoms.

Offer medication for anxiety if available and necessary.

Treatment for Panic Disorder

Best practice treatment is:

  • Selective serotonin reuptake inhibitor (SSRI) and Cognitive behavioral therapy (CBT) (either on its own or taken together)
  • Benzodiazepines for when the patient is in acute distress.


References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Panic Disorders. Ontario Tech University.

Pica

Definition: Pica is an eating disorder where a person persistently eats or craves things that are non-food items. The behaviour must be present for more than a month, developmentally inappropriate or not culturally practiced. Items that are commonly eaten are: glass, paint chips, clay, cigarette butts, hair, feces, dirt, coins, ice, paper, grass, rocks, plaster and toys. Pica is not limited to this list and almost anything could be consumed.

Common health concerns:

  • Parasites
  • Damage to teeth
  • High lead levels on blood from eating items containing lead
  • Nutritional problems
  • Poisoning from ingesting something harmful such as a household cleaner
  • Infections in the mouth, stomach, or intestines


Supporting someone with Pica:

  • make the environment safe
  • redirecting individual when a non-food item is present that they may want to eat
  • nutritional supplements
  • restricting access to harmful items
  • make sure all staff are aware of the diagnosis
  • teach danger awareness skills to the individual
  • teach different behaviours (picking up an item and throwing it away or putting it
  • back in its place instead of eating it) and provide positive reinforcement when the appropriate choice is made
  • skill building- teach the individual how to identify food from non-food items
  • offer snacks on a consistent schedule
  • vacuum or sweep floors daily


References:

Autism Speaks Autism Treatment Network, Autism Speaks, & Massachusetts General Hospital.

(2014). Pica (p. p.1-1). https://thompsoncenter.missouri.edu/wpcontent/
uploads/2016/11/PICA-PROFESSIONALS-GUIDE_FINAL.pdf

George Timlin and Joanna Burden. (2017). PICA Information Sheet.

https://www.sendsupported.com/wp-content/uploads/2017/09/PICA-doc.pdf

PICA – National Eating Disorders Association. (2024, March 22). National Eating Disorders
Association.

https://www.nationaleatingdisorders.org/pica/

Pica (eating non-edible items). (2023, November).

https://www.cambspborochildrenshealth.nhs.uk/services/cambridgeshire-communitypaediatrics/
pica-eating-non-edible-items/

Prader-Willi Syndrome

Definition: This is a rare genetic condition in which the person has a constant sense of hunger. They want to eat constantly because they never feel full (hyperphagia). Many of the health complications that persons with Prader-Willi syndrome have are due to obesity.

Common signs and behaviours:

  • Food cravings, excessive interest in food, and weight gain. This is almost always present and causes the individual to constantly seek food and eat food.
  • Frustration, agitation, mood fluctuations, temper outbursts
  • Needing to have things done a certain way, including in a particular order, time, or place
  • Difficulty with changes in schedule or routine
  • Difficulty transitioning from one activity to another
  • Poor growth and physical development. Often short in height, low muscle mass and high body fat.
  • Mild to moderate intellectual disability
  • Speech problems
  • Sleep disorders e.g. sleep apnea, which may cause daytime sleepiness and worsen behaviour issues.


Behaviour Intervention Strategies

  • A supportive living environment sensitive to this problem of overeating is essential. They will require constant supervision to decrease overeating. Access to food should be as limited as possible. Constantly seeking food becomes an obsession. They may forage food that most people would consider inappropriate / excessive, such as a bag of sugar, frozen food.
  • Consult with a dietician or nutritionist who can provide guidelines for healthy portion sizes for meals and snacks.
  • Post the schedule of the day’s events & set of rules. Be sure to include meal and snack times so that the person knows when food is available. Read and discuss these events and rules at the start of the day so they are clearly understood. It is important to establish clear expectations that remain consistent day to day.
  • Give praise and encouragement to ensure positive aspects of their day is recognized to help them feel successful and teach what behaviours will result in social validation.
  • Access to food should not be contingent on behaviour i.e. do not use food as a reward. Instead, reinforcements (rewards) should be activities or items the client
    enjoys.
  • Give transition prompts (e.g. 5, 3, then 1 minute “warnings”) before moving on to the next activity.
  • Less preferred tasks should always be followed by preferred tasks in order for the person to have something to look forward to. Again, do not use snacks or meals as reward.
  • Provide concrete choices throughout the day.
  • Avoid ambiguity e.g. instead of saying “later” or “in a while”, say “after lunch at about 2:00”.


References:

National Organization for Rare Disorders. Prader-Willi Syndrome (July 12, 2023)

Accessed at: https://rarediseases.org/rare-diseases/prader-willi-syndrome/

Prader-Willi Syndrome Association. Applied Behaviour Analysis and Prader-Willi

Syndrome, Part 1: Explaining ABA (October 3, 2018). Accessed at: https://www.pwsausa.org/applied-behavior-analysis-and-prader-willisyndrome-
part-1-explaining-aba/

Schizophrenia

What is Schizophrenia?

Schizophrenia is defined as a psychiatric disorder involving chronic psychosis. Little is known on what causes Schizophrenia, however, researchers believe that it may be a combination of the individual’s brain chemistry, family disposition and environmental contributors.

Symptoms of Schizophrenia

There are not always interventions for the below symptoms, however, seeing a decrease/absence of symptoms may indicate if a patient/client’s medications are working.

Positive Symptoms:

A change in behavior/thought which is observably present in a patient. These are delusions, hallucinations, and disorganized speech.

1.) Delusions

Described as fixed false beliefs; not culturally sanctioned, intensity can vary, described as though it exists.

Persecutory/paranoid: believes one is in danger, being followed/monitored, harassed/conspired against. May involve a government agency/family/neighbours/friends. If paranoid, they believe they will be harmed by others and will be exhibited by suspiciousness (ex. Need all food items to be unopened
in order to take their medications)

Referential

Grandiose: patient believes that they have a special power/talent/abilities/identity (ex. They believe they are God)

Thought broadcasting/insertion/withdrawal

  • Somatic: believes that one’s body is diseased/changed (ex. Getting a cut means they are going to get staph infection and die)
  • Erotomania: the patient believes they are loved intensely by the loved object (normally one who is married, with a higher socioeconomic status and/or unattainable)
  • Misidentification
  • Religious: preoccupation with religious ideas/behaviours
  • Control: believes they have been taken over and are not under their own control (they have been possessed by ghosts)

2.) Hallucinations

  • Hallucinations are a perception-like experience, without external stimulation of the sensory organ (can be any sensory modality). The patient is the only one hearing a voice/voices talking to them.

3.) Disorganized Speech

Disorganized speech is indicative of disorganized thought process. This means that it’s hard to follow a patient/client’s train of thought or be able to respond coherently to
questions asked.

  • Loose Associations: patient goes from one unrelated topic to another during conversation, unable to follow a logical/meaningful pattern.
  • Perseveration: keeps repeating the last word, phrase or ideas in response to different questions.
  • Circumstantial: extra, unnecessary, sometimes tedious details added. While there is a clear, recognized link between associations, the speech takes a circuitous route before reaching its goal.
  • Flight of Ideas: the patient is talking fast and continuously; the ideas go from one to another.
  • Clang Associations: puns/rhymes – speech is guided by sounds of words rather than the response making sense in response to the conversation/question asked (e.g. How now brown cow).
  • Tangential: similar to circumstantial but does not reach a goal.
  • Thought Blocking: sudden interruption with flow of speech. The patient may appear like they are having a hard time completing their thought – may not recall what they were talking about.
  • Word Salad: extreme form of loose associations; speech is incomprehensible and incoherent because of lack of logical and meaningful connection between words.
  • Concrete Thinking: literal thinking; unable to think abstractly and interpret simple proverbs.
  • Neologisms: making up nonsensical-sounding words (ex. I ‘examplishied’ the food).
  • Perseveration: persistently repeating the last word, phrase or ideas in response to different questions.


Negative Symptoms:

Negative symptoms are functions that have been diminished or are not present in the patient.

1.) Lack of Motivation
2.) Diminished emotional expression
3.) Apathy
4.) Lack of energy

Treatment for Schizophrenia

Antipsychotic medications are part of the main line of treatment for individuals with schizophrenia, along with Cognitive Behavioral Therapy (CBT) in helping with residual
symptoms. The family/caregiver should also be provided support as Schizophrenia is a lifelong illness.

Inpatient Treatment:

  • Conducting a Mental Status Assessment on a daily basis – helps to establish a patient’s baseline and deviations from it. Always assess for risk
  • When symptoms prove to be excessive/environment may be
    overstimulating the patient → decrease stimuli, provide distractions such as music, accompany the patient for a walk, ask the patient what can help. Medications should not be the first line of nursing interventions


Outpatient Treatment:

  • ACTT (Assertive Community Treatment Teams)
  • Community Treatment Orders
  • Long-Acting Injections
  • Substance use treatment as Schizophrenia may be accompanied by concurrent disorders


References:

Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Schizophrenia. Ontario Tech University.

Social Anxiety Disorder

Social Anxiety Disorder refers to a high level of anxiety/fear during or around social situations.

The table below outlines the major symptoms and appropriate interventions:

Social Anxiety Symptoms & Intervention

SymptomPresentationIntervention
Avoidance of Social SituationsTries to leave social situations before or while they occur.Promote participation, can be passive participation in group programming. Provide exposure and routine to social situations.

Promote use of items that may distract the client during social situations, such as an item that can be used as a fidget device.
Fear and feelings of anxietyThey fear that anxiety symptoms that will be negatively evaluated, and lead to rejection by others.Assist by changing negative cognitive constructs to positive ones. For example, if voicing thoughts that people are not enjoying their company, you can say that their company has been pleasant.

Treatment for Social Anxiety Disorder

Treatment may fall between Cognitive Behavioural Therapy (CBT) and/or medication (SSRI or SNRI) for initial therapy, based on availability and patient preferences.

References:


Ontario Shores Foundation for Mental Health (2023). Common Mental Illnesses:

Assessment and Documentation. Social Anxiety Disorder. Ontario Tech University.

Stepping into the Role of Direct Support Professional

Please find below the following resources for this section:
 HANDS & Vita CLS – The international Journal for Direct Support Professionals:
Volume 9 – Issue 3 – March 1, 2020 (6 pages)
References:
The international Journal for Direct Support Professionals. Volume 9 – Issue 3.
(March, 2020). HANDS & Vita CLS. Attached

Trauma

Please find below the following resources for this section:

  • Chanda Dunn – Trauma and Individuals with Intellectual and Developmental Disabilities (2 pages)

References:

Chanda Dunn. (2018). Trauma and Individuals with Intellectual and Developmental

Disabilities. University of Tennessee Center on Developmental
Disabilities, Vanderbilt Kennedy Center for Excellence in Developmental Disabilities.

https://vkc.vumc.org/assets/files/tipsheets/traumatips.pdf

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